6 days in

Well, I've made it six days.  Six looooong agonizing days....
Here's a sneak peak into what goes through my mind throughout this whole thing

"Hey...you have a tube in your throat. Get it out."
(2 seconds go by)
"Hey...you have a tube in your throat. Get it out."
(2 seconds go by)
"Hey..."

Sprinkle in some violent gagging fits and there you have it.

I still haven't seen an improvement with my Crohn's.  This makes me wonder how I am supposed to reach remission with this.  I see my doc one week from today, which is about half way, and I hope I have a big turn around by then- or this thing is outta here!!!

What goes in the tube?

Breakfast, Lunch, Dinner, Snacks and Dessert.........blech :)

Is that a tube up your nose?!?!?!?!?!?

Well.....my Crohn's journey continues.  I have had a feeding tube placed and will be 'eating' this way for a month.  As shocking as it may be to some, I feel it is the lesser of two evils. 
Let me back up a bit and go over the last couple of months.
Once Paleo put me in remission, I stopped taking the steroids.  Things started to decline a bit and so, in trying to halt any progression, I went back on the steroids.  The steroids work as usual and a month later I could go off of them.  Well, again, symptoms start to peek through and I was back on the steroids.  Well.....this time, the steroids stop working.  My arthritis was intense, I started having eye issues (look up extra intestinal manifestations of Crohn's) , along with appetite loss and nausea.  My doc wanted to try Prednisone. (Uh, NO THANKS!!!)  The side effects of Pred are gnarly, I wanted to avoid it altogether.  There has been a lot of research lately showing that Enteral Nutrition (tube feeding) is nearly as effective as Pred!  It allows the guts to rest while returning the gut bacteria to where it needs to be. So here I am.
They inserted it yesterday, and I start the feeding today. It is a bit more than I expected and I must admit that I have had some doubts about this decision.
I'm still a bit gaggy and sore but that should let up in a day or two.
I'll keep my blog updated......thanks for coming over and checking up on me!

my old friend, steroids

Yep, I am back on the 'roids....
My guts are actually doing pretty well, right now.  It is the extra-intestinal manifestations that are giving me a hard time.  Namely, arthritis.
So, I am back on them and now really considering the Remicade.
Waking up every morning feeling like an 80 year old is getting old :)

Making Progress...

I have been promising pictures from the beginning but have yet to post some.  Well, even though I am not at my goal, I wanted to show that I have made progress.  It seems like I am losing and gaining the SAME 3-4 LBS!!!  Those evil pounds!
So here is what 21lbs lost, more energy, and feeling good looks like.
Thanks to all those that continue to read my story, I appreciate each every one of you!

All Quiet on the Gut Front

I am three days off the steroids and so far so good!!!!!  No issues, no pain, no nothing.  I am cautiously optimistic :)

Here we go again

We are back from vacation and getting back into the swing of things.  I maintained paleo while I was away and didn't have any major issues.  YAY!!  So tomorrow I go OFF the steroid again.  Second times a charm, right?!?!?
So....here we go again!